Your Data and Your Right To Opt Out
National Data Opt-Out (NDO-O) was introduced along with the Data Protection Act 2018 and GDPR on 25th May 2018. This provides a secure and accessible way for patients to opt out of their confidential patient information being used for purposes other than their individual care and treatment except for certain exemptions.
The National Data Guardian (NDG) states that, “A patient should be able to state their preference once (online or in person), confident in the knowledge that this will be applied across the health and social care system”.
The national data opt-out does NOT apply to information used for individual care, for example, Summary Care Record, Local Detailed Care Record. These are generally covered by other opt-out arrangements.
You can read more about how your data is used by downloading the Your Data Matters Leaflet
The leaflet is also available in British Sign Language
For an Audio Version Click here
Easy Read Version Easy Read – Your Data Opt Out Choices
Who can OPT OUT?
Anyone over the age of 13 years can opt -out. People with parental responsibility can set an opt-out for their children under 13 and those with a formal proxy relationship can set an opt-out choice on behalf of the person for whom they hold responsibility.
The national data opt-out choice CANNOT be set by your GP or other member of the practice staff.
How do I set up or Change an Opt Out Choice?
A patient has to register their choice to opt out only once, and that registration applies to all healthcare settings and organisations, not just general practice. They can do this by using one of the following:
- Online service – Patients registering need to know their NHS number or their postcode as registered at their GP practice
- Telephone service 0300 303 5678 which is open Monday to Friday between 0900 and 1700
- NHS App – for use by patients aged 13 and over (95% of surgeries are now connected to the NHS App). The app can be downloaded from the App Store or Google play
- “Print and post” registration form. Photocopies of proof of applicant’s name (e.g. passport, UK driving licence etc.) and address (e.g. utility bill, payslip etc.) need to be sent with the application. Print and Post Opt-in Registration Form. It can take up to 14 days to process the form once it arrives at NHS, PO Box 884, Leeds, LS1 9TZ
- Getting a healthcare professional to assist patients in prison or other secure settings to register an opt-out choice. For patients detained in such settings Guidance is available on NHS Digital and a Proxy form is available to assist in registration.
The choice to opt in or out applies only to the healthcare system in England. It does not apply to health and social care services accessed in Scotland, Wales or Northern Ireland.
You can download or read the practices’s policy on National Data Opt Out Guidance Policy